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Posted by LISA on April 02, 2000 at 03:48:04:

In Reply to: Re: Why Don't Doctors want to diagnosis CP? posted by trouble501 on February 04, 2000 at 22:46:28:

: :
: : My son has a mild form of CP. He was born two weeks early and was blue at delivery and had low oxygen saturation. He was put into ICU for 12 hours on a Ventolator(sp?). Today he is four years old and is in the 1% for fine motor skills and is at the age equivalent level of 3 years old for his gross motor skills.

: : It has taken four or five different visits to Doctors to have them give us a diagnosis of CP.

: : It seems that Doctors are afraid to make this diagnosis.

: Dr. tend to pass these children off to other Dr.s because there afraid of law suits,and don't want to be resposible for misdiagnosis,so they try to pass it off,especialy if they feel it was a hospital error,i just found out about my 14month old daughter,and its very fustrating because they use the phrase...she has a 50\50 chance of doing anything,so i guess only God has the true answers for us,when they will be answered????who knows.
: Just finding out i'm devistated and mad and i do feel all alone,but i know if it was the Drs. child it would be a different story.good luck and i hope my reply made sence.
: if u have any ?'s write at trouble501@dklb.net

MY 2 YEAR OLD SON HAS CP. IF THE PHYSICIAN IS NOT WANTING TO GIVE YOU A DIAGNOSIS THEN YOU NEED TO FIND A NEW DOCTOR. MY SON'S PHYSICIAN WAS THE SAME WAY. WHEN I EXPLAINED THAT HE DID NOT USE HIS RIGHT SIDE MY PHYSICIAN SUGGESTED THAT I "HOLD DOWN THE LEFT SIDE AND MAKE HIM USE IT." BEING A NURSE THIS WAS NOT AN ACCEPTABLE ANSWER TO ME. BEING A NURSE ALSO MADE IT AN UNCOMFORTABLE SITUATION FOR ME TO GET A SECOND OPINION BUT I'M GLAD I DID. THE SECOND DR. HAD AN MRI DONE IMEDIATELY AND YOU CAN'T NOT GET A DIAGNOSIS WITH AN MRI. IT'S RIGHT THERE IN BLACK AND WHITE. YOUR PHYSICIAN , LIKE MINE , IS PROBABLY AWARE OF SOMETHING THAT HAPPENED AT BIRTH THAT CAUSED THIS PROBLEM. I SUGGEST GETTING A COPY OFYOUR MEDICAL RECORD. IT WILL NOT BE AN EASY TASK. I HAD TO GET A LAWYER JUST TO GET THAT FAR. I WORKED IN THE FACILITY WHERE MY SON WAS BORN AND THEY WENT SO FAR AS TO SAY THAT THE RECORD HAD BEEN LOT. DON'T GIVE UP. DIAGNOSIS IS IMPORTANT AND THE SOONER THE BETTER. GOOD LUCK LISA

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