Posted by Sherri-Lyn
on May 04, 2000 at 17:35:08:
In Reply to: Spastic Diplegia posted by Carolyn on February 21, 2000 at 16:19:58:
: I am the mother of a two year old girl who has been diagnosed with spastis diplegia. Although we have given her a lot of physio and exercises her leg muscles still remain very tense.
: This therefore causes her legs to scissor when she stands and also her hips to move outwards. We have been told by orthopaedic surgeons that if her abductor muscles are not released they will eventually pop her hips out. This would mean major problems later in life.
: We are wanting to know whether anybody out there has had a child with similar problems and can tell us of their experiences.
: We are unsure whether surgery is the best option or should we be looking at other alternatives first.
I am 29 and have spastic diplegia. I've had my achilles tendons lengthened twice. The first one in 1974 with good results. I just had surgery on one leg again in February of this year, and am in a cast for another two weeks with the other leg. The first surgery did leave scars, but the procedure has changed a great deal. I was awake this time, and the procedure only took about 20 minutes. I was home within 3 hours of going to the hospital. The incisions are very small - I probably won't even be able to see them after a while. I am impressed with the outcome of these surgeries - even though the recuperation is taking longer than I would like. (I'm not a patient person - I like immediate results, but that doesn't happen) When I was 4 1/2 though ( when I had surgery the first time), I recovered a lot faster. The doctor took the casts off after six weeks, and I walked out of his office with little or no assistance. This time, I've had to regain strength in my ankle. If Hyperbaric treatments are not available to you, do some investigating into surgery. I had good results. I can also tell you from discussions with my mom, that this is a very frustrating process. Good luck with your search, and keep up with the message board.