Posted by Phoenix
on July 12, 2000 at 05:28:20:
In Reply to: Re: daughter with ataxic cerebral palsy - therapy? posted by Avery K on November 13, 1999 at 13:28:22:
: : My daughter is now 13 and I was aware that she had seizures at age 3 (her eye lids would flutter and teeth clatter for a few minutes after awakening). At age 5 she had a grand mal seizures so we controlled them with medication. Nothing was said about CP until 3rd grade when she started falling due to an odd gait that she started to have. She is not spastic --but ataxic which causes her to walk with her legs far apart and to have pour sense of balance. When she walks she leans on a wall for balance and this has caused her to develop scoliosis.The doctor doesn't feel that it is bad enough to warrant a brace. My daughter has recently gotten a walker so she can stand upright and not fear falling with every step.
: : ****When she walks her right foot,hip,and shoulder are turned outward which cause her to fall sometimes even with the walker. ?? Does anyone have or know someone with a similar difficulty in walking and are there any therapy or equipment suggestions that my daughter can try to help her turn her foot straight???thanks, Avery
You need to contact, "The Institutes for the Achievement of Human Potential," in Philadelphia, PA. They have been helping brain-injured children and adults become "well" for over 40 years. My son, who also had Cerebral Palsy, has benefited greatly from their programs. They teach parents how to detoxify their children (who seize) from their medications within a year.
Cerebral Palsy; Autism; Mental Retardation; Learning Disabilitites; ADD & ADHD, etc... are only labels which describe particular "symptoms" of brain-injury; and that's all they are----all of them----brain-injuries. The Institutes teaches families how to neurologically organize their children so that they may create new dendritic pathways around the damaged areas of the brain, and grow existing brain cells. Eventually these individuals can function normally physically, intellectually and socially, and perhaps even above average or higher.
The program is intensive, but what parent out there wouldn't want to provide their CP child with a chance at a normal life? They refuse NO brain-injured child----they help the most mild of brain-injured, to the most profoundly brain-injured or comatose victims. They have even brought people out of 18 year comas. They deal primarily with children who are brain-injured, though family members can attend their lectures if they are working with a brain-injured adult as well.
They are a non-profit organization. You can research them at: http://www.iahp.org
Feel free to contact me if you have any other questions about them.