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Message
Posted by Rhea Partovi on August 09, 2000 at 14:19:45:

In Reply to: Re: Hyperbaric oxygen therapy posted by Jo Ann Jackson on June 03, 2000 at 11:06:22:

: Cheryl,
: My name is Jo Ann and my daughter is 7 and has mild to moderate CP. I have been following Hyperbaric Oxygen info fo a while and I believe in my heart this is the treatment for her. My daughters name is Jordan and her legs are mainly affected by the CP. My problem is finding the funds to pay for the treatments. It is my understanding that insurance in most cases won't pay for the treatment because it hasn't been approved yet. I also have the other problem that I live in Texas and I can't find a place here that is doing the treatment for Neurological purposes. They primarily do wound care. Please if you can give me any pointers please do. My e-mail address is jabberjack@hotmail.com

: Thanks,
: Jo Ann

:
: : : In the fall of 1998, my daughter was finally diagnosed with CP. She was 5.5yrs old at the time. After she had a gait analysis done, the orthopedic doctor recommended that she have tendon lengthenings performed and possibly derotational osteotomies. After years of being told she would grow out of her gait problem we decided we would take charge of her treatment and see what could be done instead of surgery. We had many relatives tell us about a show that they saw about a lady who was having success using hyperbaric oxygen treatments with her twins that have CP. Kacey had 2 sessions of hyperbaric treatments totaling 54 treatments in 1999. In the fall of 1999 the gait lab called to make what they thought was a post surgical appointment. When I told them she did not have the surgery only hyperbaric treatments they wanted to do the recheck anyway. We finally got the results and are exstatic!!!! She has improved physical assessment with diminished spasticity. "Kacey is continuing to make satisfactory progress without surgical intervention and we would suggest continuing with her non-operative treatment. We would not suggest any surgical intervention at this stage. Needless to say I have been telling anyone who would listen. Good luck and God bless.
: : : Cheryl

Dear Jo Ann,
my daughter also has CP and we have been getting hobt for her . We are getting ready to start her 3rd set of 40 treatments and are very happy with the results. I live in Oklahoma and her treatments are going to be in Norman okla. I dont know where you are in Texas, but Norman is about 3 hours from dallas, 4 from Amarillo. If you want more info on this chamber (it is a newly opened one) let me know. Also I will be glad to go into more detail about our results if anyone wants them.. My daughter is 8 years odl with severe brain damage, cp, seisure disorder and a super sweetheart! Best of luck to you, Rhea


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