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What is a parent to do?
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Posted by Bob Goodenow
on November 01, 2000 at 15:02:30:
My first message :I have a daughter who is 24 years old. Due to CFS, she had to drop out of college in
her senior year. She has had CFC since she was 16 and is now in bed 18-20 hours a day.
She has seen many doctors and specialists. Her basic problem is low blood pressure- hypotension.
I am concerned about her general health- she gets no exercise and does not eat or drink on a regular
or sufficient basis. Occasionally, she wil go to a movie or eat out with us. So far she is not depressed,
according to her psychologist. She has no close friends. She is an excellent writer, but apparently this
is too dificult. Her only recreation is reading, TV and the internet- looking at research on CFS.
She loves animals and is a vegetarian and environmentalist at heart.
It would be nice if she could chat with other young adults with CFS.
I'd like to hear from parents facing similar problems and hopefully hear about some ideas to
help us cope and my daughter get better.
Its puzzling to me that her doctors don't seem overly concerned about her situation
and health risk cause by her lack of regular exercise and nourishment.
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