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Re: Baby Girl

Re: Baby Girl

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Posted by deedee on September 30, 1999 at 09:25:58:

In Reply to: Baby Girl posted by Richard on September 24, 1999 at 17:19:49:

: On June 5th, 1999 my daughter was born. On June 11th she was diagnosed having CF. On June 15th due to a blockage her small intestine twisted and approx. 18" died. Emergency surgery was performed to save her life.
: After three months in two hospitals, five surgeries, two illiostomies and enough pain and suffering to last a lifetime she is doing much better. Even though we are awaiting a sixth surgery to reconnect her small intestines, looking at her is like looking at a never ending sunrise. I would like to know if anyone with a cysitic fibrosis child has had similar experiances at such an early age as our daughter.

dear richard,
my daughter was born on june 11, 1999. she had a meconium ileus (intestinal blockage) before she was born. she had surgery 13 hours after her birth. she stayed at our regional children's hospital for 3 weeks and is now doing well. she was diagnosised with cf on august 26, 1999 by a sweat test. i have hoped and prayed for the test to be negative, but it was not. so, now we go day to day keeping her healthy! i hope for the best with your daughter! keep me informed on her condition.
DeeDee


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