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Hello everyone, need help, husband with CF

Hello everyone, need help, husband with CF

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Posted by Jeanie on December 15, 1999 at 23:43:03:

Hi,

My name is Jeanie and I am 26. My husband ,Michael, who is 23 has cystic fibrosis. I am writing because Mike has been very ill these past few months and has spent the last two in the hospital. He has not been listed on the lung transplant list. He still has to undergo testing. I'd like some information on what has worked for other people out there with CF, as far as different meds or foods that have improved breathing or helped to gain weight. My husband is a picky eater and it's hard to get him to eat anything but fruit and yogurt. He doesn't like hamburgers or french fries or anything fat like that even though I sometimes make him eat them anyway. He likes Salmon, but it doesn't seem like enough to me. He gets full on it. Have any of you tried alternative medicine??? If so, has it helped? What's this about a new CF drug, IB365? My husband has grown immune to certain drugs and doctors are REAL slow about finding something else to help him. Also, is there anyone out in Indiana with CF and could you please tell me what insurance you are covered by? We live in California, but may be moving to Indiana soon and I need to know what the state offers for medical insurance besides SSI and Medi-Cal. Please email me if you'd like to talk about anything mentioned in this post. Thanks for your help in advance.


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