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Posted by Leslie
on March 29, 2000 at 16:07:44:
In Reply to: Scared posted by Nancy on March 28, 2000 at 21:36:19:
: I have a 5 year old boy with CF. He is doing well overall. He does have chronic nasal problems which tend to lead to upper airway inflammation. Every once in a while I hear lousy news related to CF and I cannot help but get down. Any suggestions on how to deal with it?
I know what you mean. My son is 14 months and is doing well overall. Every once in a while I get anxiety attacks over the disease. In general though, I think focusing on all the amazing research that is going on and the GREAT news that comes out. Every little baby step helps. I have a goal that a cure is found by the time my son is 15. To reach that goal I try really hard to participate in the fund raising events sponsored by the Cystic Fibrosis Foundation. In addition, I think of all the other children that although they don't have CF have other problems. The baby next to my son in the Neonatal Intensive Care Unit was born VERY premature and he has alot more problems developmentally than my son does. My son has been healthier than the little boy he goes to daycare with, too. Also, there are children that have conditions or developmental issues that others can see and will affect their lives because they are "different". Your son is lucky that you take such good care of him that he is doing well and can generally act "normally". All in all, no one can ever tell how a life is going to end up. We just have to make our children's lives as loved as possible so that no matter what there are no regrets.
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