It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Message Board
THIS MESSAGE BOARD IS NO LONGER ACTIVE. TO SEE OUR ACTIVE MESSAGE BOARDS, PLEASE GO HERE





Re: CYSTIC FIBROSIS AND DEVELOPMENTAL DELAY

Re: CYSTIC FIBROSIS AND DEVELOPMENTAL DELAY

[ Back to Messages ]

Message

Posted by Laura Sterner on June 02, 2000 at 02:40:58:

In Reply to: Re: CYSTIC FIBROSIS AND DEVELOPMENTAL DELAY posted by MICHELLE BOND on November 06, 1999 at 11:35:59:


: : : MY SON AUSTIN, WAS DIAGNOSED WITH CYSTIC FIBROSIS AUGUST 11, 1999. HE IS 2 1/2 YRS. HE HAS BEEN DEVELOPMENTALLY DELAYED FOR THE PAST 2 1/2 YEARS. HE IS DELAYED IN THE AREAS OF MOTOR SKILLS, SPEECH, AND SOME PHYSICAL DELAY. HAS THERE BEEN ANY OTHER CHILDREN THAT HAVE CYSTIC FIBROSIS THAT HAVE ALSO HAD DEVELOPMENTAL DELAY? HIS PHYSICIAN TOLD ME THAT CYSTIC FIBROSIS CHILDREN USUALLY EXCEL IN ALL AREAS, THAT THEY ARE NOT DELAYED. I AM TRYING TO MAKE SENSE OUT OF ALL OF THIS. IF AUSTIN WAS NOT ABLE TO ABSORB THE FOOD HE HAS BEEN EATING FOR 2 1/2 YEARS COULDN'T THAT CAUSE DEVELOPMENTAL DELAY?

: : hello, my son has cf and was diagnosed when he was between 5 and 6 months old. At that point he had almost starved to death and had a seriouse case of failure to thrive. He is 8 1/2 now and doing pretty good, but he has had some very hard times. When he was little he could not hold down any food, he had to be breast fed until he was two 1/2 at which point a feeding tube was finally put in. He did have some delay, of course without enough nutrition he was not growing like he should have been, at some point he was even below the growth charts. After having the feeding tube in he was getting the nutrition he needed and he started to become stronger. I noticed improvements in his speech and his strength. It did take a long time before he caught up though and now he does have times where he still cannot keep on the weight,(he no longer has the feeding tube) He is totally normal now as far as being delayed but he does have some speech problems but he has also had tubes put in in ears 10 times and had sinus surgery 5 times (to remove nasal polyps). Ear problems can effect speech. By the way is your sons physician a pediatrician or a cf doctor? I have only been on the message boards a couple of times and I cannot believe the stories I read. there are so many different cases of cf that it must be hard even for a doctor to understand what is what and how to treat it.Well I am rattling on so goodbye and good luck with your son.
: : tina cunnington

My Son Greg Varner was diagnosed with CF at 3 mos. who is now 18 yrs of age he did not
speak until the age of 4 yrs. old then had special classes for speech therapy untill he was 8 yrs.
at first the Doctors at Stanford told us that perhaps it was a normalty and he would speak when he was
ready but did not inform us that along with his underdevelopment (Growth) that mentally he would have
special needs ;reading skills are affected some writing ,concept etc. Greg's Father and I have
been Divorced for 10yrs.and last year I finally remaried and he decided to stay with Dad ; Dad
took him out of Special ED. and it has been a great struggle to fit in and keep up with the other
12th graders.Greg decided life with dad my not be helpful at this time in his life,he will need to
repeat the 12th grade ; his Dad percieves him as your tipical 18 yr old though he seems to have
a mind and mentality much of that as a 16 yr old.
This Summer he is moving back with Mom and Now I live where the quality of air is
much cleaner in Colorado much more than that of California.
Have plenty of Patience and Love cause they need all of your devotion and help through the
early school years. My Son had pneumonia 3 times ,a double hernia operation at 7yrs.from coughing
and a G tube implant at the age of 10at 35lbs because of undernourishment due to the inability to absorbe
calories; The G-Tube eally made a difference in his weght + his ability to become more be able
to absorbe mentally what was going on in the class room and his grades improved greatly in the
first year that he had recieved his implant the G-tube which provides him with a high caloric milk
shake feeding durring the night when he is sleeping.
Good Luck With Your Son
laura@180degrees.net
Laura Sterner



Follow Ups




All times are GMT -7. The time now is 04:02 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!