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Re: Mild cases???
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Posted by Chris
on June 16, 2000 at 13:04:18:
In Reply to: Mild cases??? posted by Heather on May 16, 2000 at 21:55:59:
My son has what has been labeled as a mild case of CF by his doctors. He is 14 years old and in excellent health. He was diagnosed at 2 years old after not minmial weight gain. But once the CF was detected and he started on treatments his health has improved tenfold. To my delight he has newer been in the hospitial for any CF related issues and has not needed antibitoics at any time for lung infections. he is able to go on 10 mile mountian bike rides and be ahead of me most of the time. Sports have been a great asset for his health. The biggest benifit to date is him starting on TOBI it has improved his lung functions by leaps and bounds. There are mild cases of CF out there but for the children I think it is hard to understand and deal with day in and day out.( I hear over and over treatments agian yuck) There will come a time when all of these children will no longer have to worry about or feel the effects of CF. Until then to all CF sufferers and their families keep the faith that soon there will be a cure of a new treatment and to all the researchers people contributing to finding a cure you have my upmost respect and admiration. Hi. My daughter Taylor was diagnosed 1 1/2 yrs. ago by sweat testing and having low vitamin levels. Her
: belly is distended and her stools were very foul and loose. She has never been very sick, mostly just
: ear infections, a little bronchitis and one slight case of pneumonia. Even then you couldn't slow her down.
: She goes to daycare and has had her share of colds and coughs, but lungs have been perfectly clear all
: the time. Our doctors have mentioned that she may have a mild case but you cannot tell what the rest
: of her life will be like because of how the disease affects her now. I know some genes cause more digestive
: problems vs. pulmonary and I feel that maybe that is how Taylor's genes are. Taylor has more energy than
: I know what to do with and has been so healthy, even though she is in daycare full time. I know some people
: aren't even diagnosed until very late in life. I'm just wondering if anyone has any info on mild cases or people
: who are diagnosed late in life. Has anyone ever heard of anyone going into remission from CF?
: Thanks, Heather
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