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Re: Just wondering if this sounds like anything to anyone but me?

Re: Just wondering if this sounds like anything to anyone but me?

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Posted by lisa on July 29, 2000 at 04:08:58:

In Reply to: Just wondering if this sounds like anything to anyone but me? posted by Amanda on July 07, 2000 at 02:40:03:

: Headaches(places hands on eyes and says it hurts here and between eyes and on the forehead)

: Sinus infections(has had several over the years, I thought that it was just a cold until
: this year when I took him to the doctor and he said it was cronic sinusitus)

: Leg cramping(this has been happening for years, I thought it was growing pains)

: Bowel movements(He has always had a hard time with this, ever since he was a small baby, He
: strains so hard his face turns beet red, There has been times that there was blood in his
: stool because he was pushing so hard)

: Stool(I noticed the other day monday/tuesday that his stool was flooting in the toliet,
: at the top of the water,and after he uses the bathroom you can't breath, it is a different
: kind of rotten smell)

: Weight(I have always thought that he was on the thinner side, but I could be wrong, He was
: my first son so maybe thats just how boys are. But my sisters have sons and they are all
: very healthy looking)

: Bathroom breaks(he uses the bathroom(bowel movements) at least 4 times per day)

: Sweating(he sweats perfusley(SP?) He always feels sticky and gritty.(like he has sand all
: over him) But all he was doing was riding his bike.)

: I don't know if this sounds like anything but a worried mom. Do any of these things sound
: like cause for concern to anyone but me?

amanda
i am confused. has your son been diagnosed w/cf? how old is he? the symtoms you have described do indeed sound like cf related problems. i have two daughters w/cf 19 and 15. the floating foul smelling bm's, the sinus problems, the frequent use of the toilet, the way sweating makes his skin feel, the thinness, ALL are symtoms of cf. if you have NOT had him sweat tested or if your docs do not suspect cf, i would have him looked at by a doc who is knowledgable in cf, and have him sweat tested IMMEDIATELY!! get him on enzymes for the digestion, have his sinuses looked at by a specialist (my daughter has had TWO sinus surgeries already) and give him lots of gatorade and watch him closely in hot weather. treatment should begin early and be administered vigorously to keep too much permanent damage from being done. you may e-mail me if you'd like i have ALOT of "cf tips" as i have 19 yrs experience X 2!! let me know how it's going ok? Keep the faith lisa


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