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Re: RE:PREGNANT DAUGHTER WITH CYSTIC FIBROSIS

Re: RE:PREGNANT DAUGHTER WITH CYSTIC FIBROSIS

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Posted by Melissa on August 27, 2000 at 13:51:44:

In Reply to: Re: RE:PREGNANT DAUGHTER WITH CYSTIC FIBROSIS posted by lisa on August 21, 2000 at 02:50:41:

: : HI ALL, JUST WANTED TO SEND YOU ALL A MESSAGE AND TELL YOU ABOUT MY 24 YR. OLD DAUGHTER WITH C.F. WHO IS PREGNANT.....SHE IS NOW 7 MONTHS WITH ONLY 8 MORE WEEKS TO GO....WISH I COULD TELL YOU IT HAS BEEN ALL EASY GOING,BUT ANYONE WITH A C.F. CHILD KNOWS THIS ISN'T TRUE...........SHE IS DOING WELL RIGHT NOW BUT HAS BEEN HOSPITALIZED 3 TIMES ALREADY BECAUSE OF LOW PFTS......MY GRANDAUGHTER (CHLOE) IS DOING WELL...AND IS NOW AT 3LBS........WE KNOW SHE IS GOING TO BE FINE BUT IT IS MT DAUGHTER THAT I HAVE CONCERN ABOUT.......BETH IS MY 3RD CHILD TO HAVE C.F. AND I LOST THE OTHER 2 AT A YOUNG AGE SO YOU CAN SEE MY CONCERN.......THE MAIN REASON FOR THIS MESSAGE IS TO GIVE ALL YOU C.F. PARENTS HOPE AND ENCOURAGEMENT FOR YOUR CHILDREN.........I HAVE SEEN IT ALL IN MY 32 YEARS OF DEALING WITH THIS TERRIBLE DISEASE AND AM AT A POINT THAT I THOUGHT WE COULD FINALLY RELAX A BIT AND JUST WAIT FOR A CURE.........THEN YOU CAN IMAGINE OUR SURPRISE TO FIND OUT BETH WAS PREGNANT......SOMETHING WE THOUGHT WOULD NEVER HAPPEN.....I WOULD APRRECIATE ANY ENCOURAGING WORDS AND PRAYERS FROM YOU ALL......I ENJOY TALKING WITH OTHER C.F. PARENTS AND PATIENTS AND TRYING TO HELP THEM ANY WAY I CAN.......THANKS TO THE MESSAGE BOARD I HAVE BEEN IN CONTACT WITH OTHER MIRACLE LADIES WHO HAVE GIVEN BIRTH TO BABIES AND WHAT A HELP THIS HAS BEEN......AGAIN I LOOK FORWARD TO HEARING FROM ANYONE.....MY E-MAIL ADDRESS IS MYKENO1@AOL.COM.......THANKS, GRAMMY IN WAITING IN ALABAMA


: Dear GRAMMY
: Congratulations!!! That is really neat to hear about a woman w/cf that is having a baby. My 19 yr old would LOVE to have a baby someday but we are understandably really scared. She was told that she would not be able to take antibiotics while pregnant, and that is REALLY scary!!! We wish your daughter ALL the best of luck and we will say some prayers!!! Keep the faith!!! lisa e-mail jade2008@excite.com

Hello...I am a 32 year old with CF & I have a 2 year old daughter. I was surprised after soooo many years to find out I was pregnant. I wasnt scared or worried. I can only say that it felt right. Sometimes people dont do what is best for them such as having a baby. I was fortunate & had a great pregnancy. I delivered by c-section 4 weeks early to avoid aggrivating any hemoptysis. My daughter was healthy at a little 5lbs 2 1/2oz, but perfect. The only advice I have is to stand behind & be 100% supportive of anyone you know that has CF & is pregnant. My mother was not. She has me dad & buried. She was not willing to speak with any doctors or hear anythig positive. I know she was scared, but she has to realize that I am not stupid & if the Doctor said it wouldnt be a good idea for me that I wouldnt be a Mom. Fortunately my Mom has come around & is now there. She missed out on all the positives of my pregnancy & missed the birth of my daughter. I was in the hospital this year & she was supportive to me & my husband. I have stopped working since that hospitalization so I could concentrate on my daughter & myself. Up until then I worked fulltime. I wouldnt trade being a Mom for anything. Best of Luck to all those CF moms to be!!!!


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