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Re: Does this sound like CF?---late diagnosis??
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Posted by cat eyes,aka meranda
on September 15, 2000 at 17:53:39:
In Reply to: Does this sound like CF?---late diagnosis?? posted by Alissa on September 13, 2000 at 13:38:46:
: Hello everyone, I wonder if you can help me? My friends 17 year old son is in hospital with pseudomonos infection and bronchiectasis showing up on MRI scan. He is not recovering well and doctors are doing CF workup. At 2 years of age, he had severe pneumonia and bloated belly with evidence of malabsorption. At the time, they said CF test was negative. Has testing improved since then and could it have been a false negative test result? Can you be diagnosed this late? Also, would this mean the disease is of a milder presentation and would he possibly have a longer life expectancy? I am trying to gather information quickly, thank you so much for any help or suggestions of where to look for late diagnosis information. Alissa
ALISSA,im a 17 year old girl w/ cf. i also have pseudamonas. ive had it sice 1998. i was diagnosed about a year old at unc chapel hill north carolina.its possible he does have cf there was a 63 year old man diagnosed a while ago.i have a mild case and have been doing well. however i did alot better when i didnt have pseudamonas. ive had alot more lung infections and i get bronchitis in the winter.i have only been in the hospital twice in my life. once when the found pseudamonas in my lung culture then last winter when i caught a bad virus.other than that ive been ok. im about 5'1 and 121pds.dr says im finally in the 25% in most girls my age. well good luck and let us know what happens. meranda
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