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Posted by Nora
on September 28, 2000 at 10:19:50:
I just found this site and I thought it might be nice to talk to others with cf or others with family members who have cf. I have 13 year old daughter with cf. She is in 7th grade now and doing fair I guess. She is on her tobi month right now. She does it every other month. If anyone out there knows anything that can benefit others with cf I would love to here from you. Leslie takes adek vitamins, we do "pats" (bronchial drainage) twice a day, Dnase, and ventolin nebs twice a day also. She has the vest but hates doing it. Well gotta run. Hope to hear from someone soon.
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