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Posted by MERANDA
on September 29, 2000 at 17:39:22:
In Reply to: Leslie posted by Nora on September 28, 2000 at 10:19:50:
: I just found this site and I thought it might be nice to talk to others with cf or others with family members who have cf. I have 13 year old daughter with cf. She is in 7th grade now and doing fair I guess. She is on her tobi month right now. She does it every other month. If anyone out there knows anything that can benefit others with cf I would love to here from you. Leslie takes adek vitamins, we do "pats" (bronchial drainage) twice a day, Dnase, and ventolin nebs twice a day also. She has the vest but hates doing it. Well gotta run. Hope to hear from someone soon.
HELLO. MY NAME IS MERANDA.I AM 17 AND A CF PATIENT.I ALSO HAVE ADEK VITAMINS 2 A DAY,AND THE VEST.I ALSO HAVE BEEN ON TOBI/CIPRO.I WOULD LOVE TO TALK.HERES MY E-MAIL ADRRESS:Thornsgrl@aol.com I USED 2 HATE DOING MY VEST BECAUSE IT WAS LOUD AND HURT MY BACK NOW I LOVE DOING IT.I PUT ON MY HEADPHONES AND LISTEN TO MUSIC.THE VEST HAS REALLY HELPED ME ALOT.ITS ALOT BETTER THAN CHEST PT'S.THE VEST HAS BROUGHT UP MY PFT SCORES ANS MADE IT ALOT EASIER TO BREATH.IVE BEEN HOSPITALIZED TWICE IN MY LIFE.SINCE IVE BEEN USING MY VEST I HAVENT BEEN HOSPITALIZED.I WAS AT UNC CHAPEL HILL IN 98,THEN AGAIN IN 99.98 WAS WAS BECAUSE THEY FOUND PSEUDAMONAS IN MY LUNGS.AND LASY YEAR BACUSE I GOT A VIRUS I COULNT FIGHT OFF.IM FINALLY IN THE 25%ILE IN GIRLS MY AGE.WELL PLEASE WRITE ID LOVE TO HEAR FROM YOU AND YOUR DAUGHTER. MERANDA
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