Re: New here and would like help

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[ Home ] [ Follow Ups ] [ Post Followups ] [ FAQ ] [ Back to Messages ] Message Posted by Penny on October 07, 2000 at 18:28:57: In Reply to: New here and would like help posted by Lesley on October 06, 2000 at 09:51:23: : Hi, : My 8 year old son has just been diagnosed with Pancreas Sufficient CF. We haven't had any advice, or counselling yet, and I was wondering if any of you can fill me in on what to expect. : He also has autism, but he seems so healthy (apart from the bowel problems!), and i'm a little overcome with it all. If you have any suggestions on good books, websites to visit, or any words of wisdom then i'd love to hear from you. : thanks, : Lesley Hi, My 8 year old daughter has CF. She has both lung and pancreatic deficiences. She was diagnosed at 9 months old. She has done very well but will be going in the hospital Oct. 19 for a broncoscopy. I don't know what type of enzymes your son is on. My daughter is on Ultrase MT-12 , she is taking five with meals and snacks. She seems to be doing better recently as far as her weight gain goes. She still complains a lot with her stomach hurting, but I think that is something she will always do. We have just learned to let her eat what she wants when she wants . She is also drinking Pediasure which works well for her. Hang in there and take it one day at a time. Penny Follow Ups Post a Followup If you post a followup: Please review our message board guidelines. Please keep messages on topic. Advertising messages are not permitted on this board. Please report any violations to webmaster@healthboards.com Name: E-Mail (optional): please note: your e-mail address will be visible for others to see. Subject: Message: (add your reply here) : : Hi, : : My 8 year old son has just been diagnosed with Pancreas Sufficient CF. We haven't had any advice, or counselling yet, and I was wondering if any of you can fill me in on what to expect. : : He also has autism, but he seems so healthy (apart from the bowel problems!), and i'm a little overcome with it all. If you have any suggestions on good books, websites to visit, or any words of wisdom then i'd love to hear from you. : : thanks, : : Lesley : Hi, : My 8 year old daughter has CF. She has both lung and pancreatic deficiences. She was diagnosed at 9 months old. She has done very well but will be going in the hospital Oct. 19 for a broncoscopy. I don't know what type of enzymes your son is on. My daughter is on Ultrase MT-12 , she is taking : five with meals and snacks. She seems to be doing better recently as far as her weight gain goes. She still complains a lot with her stomach hurting, but I think that is something she will always do. We have just learned to let her eat what she wants when she wants . She is also drinking Pediasure : which works well for her. Hang in there and take it one day at a time. : Penny Optional Link URL: Link Title: Optional Image URL: Note: The moderator has the right to delete any message deemed inappropiate for this board. Repeat violators of healthboards policy will be permanently barred from the boards. Reminder - No ad messages permitted!

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