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Re: I have a 4 yr old with CF, and I'm pregnant now


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Posted by Traci on October 16, 2000 at 20:54:58:

In Reply to: I have a 4 yr old with CF, and I'm pregnant now posted by Pamela on October 13, 2000 at 21:33:51:

: My daughter has Cystic Fibrosis and she is now 4 yrs old. Things were really hard for her starting out w/ respitory and digestive. She started gaining weight and now weighs over 40 pounds!!! We are very proud of that accomplishment. But although her respitory is better, she still has some problems mainly sinus. Thats a brief history.. Now here's my situation. I have recently found out that we are expecting our 3 child (our 1st is healthy w/o cf). I am happy that i'm pregnant, but very, very worried about the new baby having cf.. I know there is a 1:4 chance of CF but statistics mean nothing to me. And I worry that the new baby is going to take away care from my daughter with CF... Has anyone ever been in my situation, if so, what was the out come and do you have any suggestions for us.
: Thank You,
: Pamela


Hi
My name is traci and I have been in your situation. It was a very difficult time. My first born has cf.He is now 4 years old,but at the time I realized I was pregnant he was about 18 months old. It was very painful worrying about whether or not my new baby was going to suffer like my first. Also, at this time I was watching some talk show and various people where arguing. Some people were stating that it was child abuse to have another child if the parent is aware of a genetic defect. I really dont have an answer for you. I viewed it as a gift and that this was meant to be. And then another surprise. I went for a sonogram only to find out that I was having fraternal twins. It meant that each fetus had a 25% chance of having the disease. I couldnt even describe all of my emotions.I was very lucky they both are carriers of the disease. You have to do what you think is right. They is no right or wrong answer. For me it would be more difficult to end the pregnancy. To live with what if ........ would be torture for me.
Yes, my unborn twins ended up with not having the disease. But, unfortunately during this same time, I was diagnosed with ovarian cancer.
Do what you feel is best. I wish you all the best.
Please contact me anytime.
traci




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