Re: I have a 4 yr old with CF, and I'm pregnant now

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[ Home ] [ Follow Ups ] [ Post Followups ] [ FAQ ] [ Back to Messages ] Message Posted by leslie on October 17, 2000 at 15:01:21: In Reply to: I have a 4 yr old with CF, and I'm pregnant now posted by Pamela on October 13, 2000 at 21:33:51: : My daughter has Cystic Fibrosis and she is now 4 yrs old. Things were really hard for her starting out w/ respitory and digestive. She started gaining weight and now weighs over 40 pounds!!! We are very proud of that accomplishment. But although her respitory is better, she still has some problems mainly sinus. Thats a brief history.. Now here's my situation. I have recently found out that we are expecting our 3 child (our 1st is healthy w/o cf). I am happy that i'm pregnant, but very, very worried about the new baby having cf.. I know there is a 1:4 chance of CF but statistics mean nothing to me. And I worry that the new baby is going to take away care from my daughter with CF... Has anyone ever been in my situation, if so, what was the out come and do you have any suggestions for us. : Thank You, : Pamela Pam, At this time I only have the one child. I do hope to have another one day. My hope is based on how well my son is doing. I think part of the reason my son is doing well is because we discovered he had CF practically in-utero(sp?), i.e. during sonograms an intestinal blockage was found. When the surgeon operated to remove the blockage, my son was 2 days old, and she recognized the blockage to be meconium ileus. After that, all the proper doctors were contacted and my son was checked and taken care of by the right folks. If I am ever lucky enough to get pregnant again, I would have an amniocentesis done to determine whether my child has CF. In my case, I wouldn't terminate the pregnancy because of it, but just so we can treat it from the beginning. So, I am wondering if amnio is an option for you? (I'm also 38 so insurance generally pays for it.) Also, I would like to pass on a quote from Cheryl Esiason (Boomer's wife), whose son Gunnar has CF, I think this is VERY inspirational: "When children such as Gunnar have been chosen to go in to battle at such an early age, it is not because they are being punished or cursed by God. It is because they are a gift, an inspiration. They are here to challenge us to open our eyes to life's frailties, its contingencies and just how precious it is. They are here to teach us - they are our heroes!" Follow Ups Post a Followup If you post a followup: Please review our message board guidelines. Please keep messages on topic. Advertising messages are not permitted on this board. Please report any violations to webmaster@healthboards.com Name: E-Mail (optional): please note: your e-mail address will be visible for others to see. Subject: Message: (add your reply here) : : My daughter has Cystic Fibrosis and she is now 4 yrs old. Things were really hard for her starting out w/ respitory and digestive. She started gaining weight and now weighs over 40 pounds!!! We are very proud of that accomplishment. But although her respitory is better, she still has some problems mainly sinus. Thats a brief history.. Now here's my situation. I have recently found out that we are expecting our 3 child (our 1st is healthy w/o cf). I am happy that i'm pregnant, but very, very worried about the new baby having cf.. I know there is a 1:4 chance of CF but statistics mean nothing to me. And I worry that the new baby is going to take away care from my daughter with CF... Has anyone ever been in my situation, if so, what was the out come and do you have any suggestions for us. : : Thank You, : : Pamela : Pam, : At this time I only have the one child. I do hope to have another one day. My hope is based on how well my son is doing. I think part of the reason my son is doing well is because we discovered he had CF practically in-utero(sp?), i.e. during sonograms an intestinal blockage was found. When the surgeon operated to remove the blockage, my son was 2 days old, and she recognized the blockage to be meconium ileus. After that, all the proper doctors were contacted and my son was checked and taken care of by the right folks. If I am ever lucky enough to get pregnant again, I would have an amniocentesis done to determine whether my child has CF. In my case, I wouldn't terminate the pregnancy because of it, but just so we can treat it from the beginning. So, I am wondering if amnio is an option for you? (I'm also 38 so insurance generally pays for it.) : Also, I would like to pass on a quote from Cheryl Esiason (Boomer's wife), whose son Gunnar has CF, I think this is VERY inspirational: : "When children such as Gunnar have been chosen to go in to battle at such an early age, it is not because they are being punished or cursed by God. It is because they are a gift, an inspiration. They are here to challenge us to open our eyes to life's frailties, its contingencies and just how precious it is. They are here to teach us - they are our heroes!" Optional Link URL: Link Title: Optional Image URL: Note: The moderator has the right to delete any message deemed inappropiate for this board. Repeat violators of healthboards policy will be permanently barred from the boards. Reminder - No ad messages permitted!

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