Re: I have a 4 yr old with CF, and I'm pregnant now

Click Here to Visit our Sponsor

FREE HealthBoards.com info from vendors!   Select: Signup Cystic Fibrosis - new products and services Aging Alternative Medicine Back Care Beauty Exercise & Fitness Free Stuff Health Products Herbal Products Natural Healing Nutrition Pain Mgmt Quit Smoking Sexuality Skin Care Stress Mgmt Viagra Vitamins Weight Loss Yoga Click here for more topics! Enter your email address: Enter your zip/postal code:

---

THIS BOARD IS CLOSED!
PLEASE GO TO OUR NEW BOARDS

---

[ Home ] [ Follow Ups ] [ Post Followups ] [ FAQ ] [ Back to Messages ] Message Posted by mary on October 26, 2000 at 19:59:07: In Reply to: Re: I have a 4 yr old with CF, and I'm pregnant now posted by Penny on October 26, 2000 at 11:44:14: Hi I have a 16 yr old daughter with C.F. and a son who is 15 and a 13 yr old son, my 2nd child was a few weeks old when my daughter was diagnosed, I had this new baby and had to find out about this c.f. too. We had him tested he is o.k. When I became pregnant with my third baby I was so scared , I also do not believe in abortion, I put this into gods hands and he blessed us with another healthy son good luck.: : My daughter has Cystic Fibrosis and she is now 4 yrs old. Things were really hard for her starting out w/ respitory and digestive. She started gaining weight and now weighs over 40 pounds!!! We are very proud of that accomplishment. But although her respitory is better, she still has some problems mainly sinus. Thats a brief history.. Now here's my situation. I have recently found out that we are expecting our 3 child (our 1st is healthy w/o cf). I am happy that i'm pregnant, but very, very worried about the new baby having cf.. I know there is a 1:4 chance of CF but statistics mean nothing to me. And I worry that the new baby is going to take away care from my daughter with CF... Has anyone ever been in my situation, if so, what was the out come and do you have any suggestions for us. : : Thank You, : : Pamela : Pamela, : I was in your situation 4 years ago. My first daughter doesn't have cf. We still to this day do not know : if she is a carrier or not. She has begged us not to make her have a genetic screening unless she : has to have blood work for some other reason. My middle daughter does have cf. She was diagnosed : at 9 months of age. She is now 8 years old and doing great. Actually we just were in the hospital : on Oct. 19th thru Oct. 23rd. Her PFT's were down some and they wanted to see why so they did a : broncoscopy and found absolutely nothing except she still has trachea malacia(narrowing of her trachea) : which may be causing some problems. Any way four years ago I was planning on having my tubes tied : we were happy with our family and didn't want to run the risk of having another child with cf. Well I had talked : to my Drs. and the surgery was planned for June of 96 while the girls were out of school and all. : Well in Feb. 96 I got up sick 3 mornings in a row... i knew what was wrong...i did a pregnancy test : and before I could get the lid on the stick thing it was positive.. in anger and fear I threw the test at : my husband and told him we had messed up big time.. that I was not having this baby and I cried all day : I never have believed in abortions and never will...I just was so scared and worried 1. that this child would : have cf. 2. that he or she would be worse than my daughter and that the girls would have to watch it suffer : and maybe even die.. i just was looney... anyway i went to the dr. and we talked about amnio...i said no : then i had that alpha feta protein done.. well needless to say it came back very high..they wanted to do : a level 3 ultrasound to rule out spinal bifida and to make sure the baby had a brain... well all that went : fine scary but the baby looked fine... I went into premature labor at 23 weeks... finally got that stopped : and then carried the baby 41weeks was induced and had to wind up having a cesarean.. gave birth to : a 9lb 3oz baby boy...... the did cord blood and one week later we found out he was a carrier but did not : have cf.... i remember crying tears of joy and then tears of sadness.... joy that he was ok... but sadness that : we were happy and afraid my daughter would think we didn't love her because she did have cf ..it was : a very difficult time but God has seen us through..my son actually helps take care of his sister alot : he sits with her through the breathing treaments and chest p.t. ...he takes his vitamins with here and : reminds her to take hers.... I am so glad that God saw better than I did because if it had been up to : me I would only have 2 kids... hope this helps hang in there and let God take care of the things that are : too big for you to handle..he is the only one that can... Penny Follow Ups Post a Followup If you post a followup: Please review our message board guidelines. Please keep messages on topic. Advertising messages are not permitted on this board. Please report any violations to webmaster@healthboards.com Name: E-Mail (optional): please note: your e-mail address will be visible for others to see. Subject: Message: (add your reply here) : Hi I have a 16 yr old daughter with C.F. and a son who is 15 and a 13 yr old son, my 2nd child was a few weeks old when my daughter was diagnosed, I had this new baby and had to find out about this c.f. too. We had him tested he is o.k. When I became pregnant with my third baby I was so scared , I also do not believe in abortion, I put this into gods hands and he blessed us with another healthy son good luck.: : My daughter has Cystic Fibrosis and she is now 4 yrs old. Things were really hard for her starting out w/ respitory and digestive. She started gaining weight and now weighs over 40 pounds!!! We are very proud of that accomplishment. But although her respitory is better, she still has some problems mainly sinus. Thats a brief history.. Now here's my situation. I have recently found out that we are expecting our 3 child (our 1st is healthy w/o cf). I am happy that i'm pregnant, but very, very worried about the new baby having cf.. I know there is a 1:4 chance of CF but statistics mean nothing to me. And I worry that the new baby is going to take away care from my daughter with CF... Has anyone ever been in my situation, if so, what was the out come and do you have any suggestions for us. : : : Thank You, : : : Pamela : : Pamela, : : I was in your situation 4 years ago. My first daughter doesn't have cf. We still to this day do not know : : if she is a carrier or not. She has begged us not to make her have a genetic screening unless she : : has to have blood work for some other reason. My middle daughter does have cf. She was diagnosed : : at 9 months of age. She is now 8 years old and doing great. Actually we just were in the hospital : : on Oct. 19th thru Oct. 23rd. Her PFT's were down some and they wanted to see why so they did a : : broncoscopy and found absolutely nothing except she still has trachea malacia(narrowing of her trachea) : : which may be causing some problems. Any way four years ago I was planning on having my tubes tied : : we were happy with our family and didn't want to run the risk of having another child with cf. Well I had talked : : to my Drs. and the surgery was planned for June of 96 while the girls were out of school and all. : : Well in Feb. 96 I got up sick 3 mornings in a row... i knew what was wrong...i did a pregnancy test : : and before I could get the lid on the stick thing it was positive.. in anger and fear I threw the test at : : my husband and told him we had messed up big time.. that I was not having this baby and I cried all day : : I never have believed in abortions and never will...I just was so scared and worried 1. that this child would : : have cf. 2. that he or she would be worse than my daughter and that the girls would have to watch it suffer : : and maybe even die.. i just was looney... anyway i went to the dr. and we talked about amnio...i said no : : then i had that alpha feta protein done.. well needless to say it came back very high..they wanted to do : : a level 3 ultrasound to rule out spinal bifida and to make sure the baby had a brain... well all that went : : fine scary but the baby looked fine... I went into premature labor at 23 weeks... finally got that stopped : : and then carried the baby 41weeks was induced and had to wind up having a cesarean.. gave birth to : : a 9lb 3oz baby boy...... the did cord blood and one week later we found out he was a carrier but did not : : have cf.... i remember crying tears of joy and then tears of sadness.... joy that he was ok... but sadness that : : we were happy and afraid my daughter would think we didn't love her because she did have cf ..it was : : a very difficult time but God has seen us through..my son actually helps take care of his sister alot : : he sits with her through the breathing treaments and chest p.t. ...he takes his vitamins with here and : : reminds her to take hers.... I am so glad that God saw better than I did because if it had been up to : : me I would only have 2 kids... hope this helps hang in there and let God take care of the things that are : : too big for you to handle..he is the only one that can... Penny Optional Link URL: Link Title: Optional Image URL: Note: The moderator has the right to delete any message deemed inappropiate for this board. Repeat violators of healthboards policy will be permanently barred from the boards. Reminder - No ad messages permitted!

---

Help us enforce our NO ADS POLICY!

---

Site owned and operated by HealthBoards.com^TM
Copyright and Terms of Use © 1998-2008 HealthBoards.com^TM All rights reserved.
Do not copy or redistribute in any form!