Cystic-L website (http://www.cystic-l.com). Check it out!



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Cystic-L website (http://www.cystic-l.com). Check it out!

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Posted by James on November 17, 2000 at 16:34:35:
Hello!
I have just stumbled onto this user forum, and it looks to be a very valuable one. There is another website which I consider to be the premiere peer-support CF website on this, God's green earth. The website is:
http://www.cystic-l.com
The two major benefits to this site are:
a) A comprehensive, online handbook which is a compilation of virtually everything you'd ever want to know about CF, including history, treatments, personal testimonials, and so forth. Printed, the manual is over 300 pages long, and well organized to boot.
b) The Cystic-L discussion forum includes over 500 members, with new ones every day, sharing their experiences with the disease whether it be their own or the disease of a loved one.
It also includes a large, online reference area for purchasing books, parephenalia and all kinds of things to help support the CF cause. Members can also post their images and website links in their growing photo database.
If you are involved in the battle against CF, this is a must for you to check out. That website again:
http://www.cystic-l.com
P.S. This is not a paid advertisement. Just a little helpful advice from one who fights the battle, too. :0)

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: Hello! : I have just stumbled onto this user forum, and it looks to be a very valuable one. There is another website which I consider to be the premiere peer-support CF website on this, God's green earth. The website is: : http://www.cystic-l.com : The two major benefits to this site are: : a) A comprehensive, online handbook which is a compilation of virtually everything you'd ever want to know about CF, including history, treatments, personal testimonials, and so forth. Printed, the manual is over 300 pages long, and well organized to boot. : b) The Cystic-L discussion forum includes over 500 members, with new ones every day, sharing their experiences with the disease whether it be their own or the disease of a loved one. : It also includes a large, online reference area for purchasing books, parephenalia and all kinds of things to help support the CF cause. Members can also post their images and website links in their growing photo database. : If you are involved in the battle against CF, this is a must for you to check out. That website again: : http://www.cystic-l.com : P.S. This is not a paid advertisement. Just a little helpful advice from one who fights the battle, too. :0)
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