Posted by Royalene
on November 03, 2000 at 23:20:48:
In Reply to: Re: I need advise on evaluating a DS child's immediate and future needs posted by Judi on November 02, 2000 at 18:03:43:
: I would find an attorney who specializes in estate planning and have them draw up a "special needs trust" for this child. The parents do not have to have control of the funds, someone competent could be appointed. A special needs trust is money that will only "supplement" whatever lifestyle the child is accustomed to (helps for when they turn 18 and qualify for SSI and can't have any assets in their own name.)
: Good luck!
It is very important to get SSI Now before this child turns 17. My brother-in-law Joey,with DS, now living with us, can not receive Medical assistants unless is medical expenses are at a high rate, this means going to the county to reapply each 6 months. His parents did not apply for SSI, when his father died because he was under 16 and going to school at the time received social security. When he turned 16 he was going to lose his SS but was tested for diabled, therefore received SS to this day. If he would of received SSI before his fathers death as a disabled child, he would have continued medical assistants. This makes me so angry.