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Posted by Karen on May 31, 2000 at 06:25:11:

In Reply to: Re: Sonogram indicates Down's Syndrome posted by Kathy on May 26, 2000 at 21:00:04:

: : My niece called me today to tell me that the sonogram she had yesterday indicates her baby girl will be born with Down's Syndrome. Her legs and arms are shorter than normal, her heart as an echogenic defect and a ventricle in her brain has some fluid. She is in her 19th week of pregnancy, is 35 years old, and, needless to say, quite devastated.

: : Is it too early to seek out support groups


:
: besides family? How do we find a specialistin this area? She has to find another OB because her current OB does not deliver at our local children's hospital. There are so many concerns .... one person she spoke to said there is nothing to do until the baby comes.

: : I know no one has any definitive answers, but possibly someone out there can give some suggestions from their own experience.

:
: My doctor suspected Down Syndrome, but did not tell me, which was fine. I was 35 also,my daughter has a small heart defect which has never been of any worry. I'm very lucky she has been so healthy. She is now 12 and I thank God he gave her to me. I'm sure your niece is scared fo the unknown and all the medical concerns make the whole thing worse. I dont have any any answers to your questions except to say give her all the love you can, your niece and her child when she is born. My prayers will be with all three of you!

Mel,
Your niece would benefit from educating herself now. She will need all the support she can get and the fact that you wrote for advice is a step in the right direction. Our daughter was born 2 months ago with DS and we had no idea (I am 37 and had sonograms every 2 weeks which showed no signs). This is unequivocably the hardest thing I've ever faced but there is so much help out there. Check with the local ARC and children's hospital - they can guide you towards support groups, specialists etc. Good luck and God bless.

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