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Posted by Reginald on June 21, 2000 at 21:53:40:

In Reply to: Sonogram indicates Down's Syndrome posted by Jan on May 26, 2000 at 20:36:30:

: My niece called me today to tell me that the sonogram she had yesterday indicates her baby girl will be born with Down's Syndrome. Her legs and arms are shorter than normal, her heart as an echogenic defect and a ventricle in her brain has some fluid. She is in her 19th week of pregnancy, is 35 years old, and, needless to say, quite devastated.

: Is it too early to seek out support groups besides family? How do we find a specialistin this area? She has to find another OB because her current OB does not deliver at our local children's hospital. There are so many concerns .... one person she spoke to said there is nothing to do until the baby comes.

: I know no one has any definitive answers, but possibly someone out there can give some suggestions from their own experience.


Jan, I too can relate to the feelings of your niece. As a new father of a child living with Down's Syndrome, I was crush when the doctor told us the news. The happiest tiem in my life soon turned to the worst. I thought nothing could prepare me or take away the pain of that emotional rollercoaster until I started praying. Joshua is now 5 months and doing excellent. We have a physcal therapist working with him weekly and he's trying to crawl. Tell your niece to love her child unconditionally and treat them like any other child. Mainly, keep god in your life and he will see you all through anything. Congratulations on the new addition to your family.

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