Posted by mary jo
on September 01, 2000 at 22:58:04:
In Reply to: Expectant Parent of child with Down Syndrome posted by Lee on August 03, 2000 at 19:30:46:
: My husband and I are expected a child in December. we have been told that our child has a condition called Down Syndrome.
: Any comments or words of encouragement, experience are welcome.
: we are reading all we can about this condition and have seen a specialist but would like to connect with other parents of children with Down Syndrome.
: Thank You Lee
Hi Lee. I just read your note this evening and noticed that all of the responses were from people who did not know about their childs condition until after birth, so i thought i would tell you what happened with me.
I had a very low afp and than had amnio which was when I was told that my child had Down Syndrome. Yes, it was a shock, which I believe that it is either way knowing before or after. The situation you are in won't be much different except in my case I felt that I was able to grieve prior to his birth for what could have been. I feel everyone tends to grieve at first. My son was born (Joseph) december 7,1993 must be something about december babies, right. So at present he is a very active though some times to active 6 year old. Two days ago he started first grade totally included with the exception of having speech during his school day. You will find in your research that many people believe in all kinds of vitamin and other medication type therapies but as for myself I have been totally against trying to change something that is working fine on its own.
Joseph was 8.9 at birth with an apgar of 9...sounds healthy enough. He had a vsd which can be common with downs children, which he had repaired at 8 months. His development was a little behind but not to much. Joseph walked at 15 months and has stopped since. OUr only problem so far that has set him aside from other children is his speech which around the age of 4 improved quite a bit. I know there will be hurdles you will face and your baby will be stubborn at times as other children are but the baby will bring joy as any other baby with or without a disability would.
I just hope you are not to upset to enjoy the rest of your pregnancy, because in the end you will still have a beautiful baby. I found it easier to tell my family and close friends ahead of time, you will want their support and they will shower your baby with love just as you will.
best of luck to you both and let us know what it will be girl or boy.