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Posted by Tami on September 20, 2000 at 19:06:22:

In Reply to: public advocacy posted by yael kamelhar on September 20, 2000 at 18:38:52:

Well, the biggest thing I would change to make things better is PEOPLE and their prejudices but
that ain't gonna happen. The most ridiculous thing a came across when dealing with the govt was
when we applied for our sons SSI, and it came time for a review and I asked why and they said to
see if his conditioned changed. It was all I could do not rale.......No (I said very sweetly DS
doesn't just go away) and they said well we must check because you never know. ACKK!!
Sorry, I have little faith in advocacy has not worked well for us. Good Luck! as they say.

: hi! i have been a service coordinator for 3 years and now am in school for my MSW(social work) i have to do an advocacy project and want to do it a related field to assist people with down syndrome. although i am familiar with the ins and outs of the "red tape" and gov't i would like a personal viewpoint as to ow you would better things for people with down syndrome.

: thanks
: yael



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