Posted by Barb
on April 08, 2000 at 18:53:14:
At age 22 I started having grand mal seizures. I have been on many medications over the years, but 13 years ago my Dr. came up with the combination of tegretol and mesantoin. Oh boy, seizure free!! My problem is they have now stopped manufacturing the mesantoin and I have to transition to a new medication. Imagine the fear of going back to what I was. Never able to drive anywhere, depending on others to get me places, not even being able to bathe without someone in the house. This was very tramatic for my children also. I am now 55 and have three beautiful grandchildren, I work and I drive. I feel helpless not knowing what the future holds for me. My husband is very supportive and we have been all over trying to find this medication. I would like to take one of the people from Novartis Pharm. and have them live the life I did for one year and I know they would put it back on the market. I also told them so when during one of our many calls to them. I lost eight pounds in 4 days out of worry. I didn't need to lose any weight. Thank you for listening because no one else really understands what it is like to have a seizure and most have never seen one.