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Message
Posted by Melba on April 16, 2000 at 01:41:58:

How do other people cope with living alone? Or staying safe during seizure clusters?

I have simple partial, complex partial and secondarily generalised seizures. Sometimes, they're not too troublesome-- but I tend
to overwork. And then my seizure frequency goes thru the roof.

Several years ago, I had a status episode; it left me with with further brain injury. (The people I was with didn't take me to
hospital until it was far too late.) Needless to say, it's not something I want to happen again.

When my sz are relatively well controlled, I don't worry about it. When they're not, tho-- I do. And I don't really feel safe living
alone.

There's noone in my life who can be relied on to stay with me during periods of increased sz frequency. My family are abusive,
and my friends all have busy lives and families of their own.

I think about getting someone to live with me. It would be safer, certainly. That said-- there are things I really *like* about
living alone. Having my own space. And I like my studio/office (ie the second bedroom)-- something I'd have to give up if
someone else moved in.

I don't think there are any easy answers to this one! But I'd certainly welcome your feedback, and any suggestions...

- Melba
- Melba

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