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Message
Posted by JOE J on April 18, 2000 at 11:02:55:

I DO THAT ON MY OWN.... I HAVE HAD TONIC CLONIC SEIZURES SINCE THE SEVENTIES...MY FIRST OCCURED AS I WAS TAKING A MORNING LEAK ...MY MOTHER FOUND ME JERKING AROUND ON THE FLOOR MAKING ANIMAL NOISES...NO MOM EXORCISM WON'T HELP....I HAVE BECOME VERY ANGRY WITH ORGANIZED MEDICINE...IT SEEMS THAT DOCTORS RUN FOR THE PDR AND START SCRIBBLING ON THEIR LITTLE SHEETS OF PAPER WITH OUT EVEN LISTENING TO THE PATIENT IE ME....FOR INSTANCE IN TWENTY YEARS I HAVE DISCOVERED...ALCOHOL IS A NO NO(NO BIG SECRET)...THE MORNING AFTER GENERALLY IS A SELF PUNISHNMENT WAY BEYOND THE EXTENT OF MORAL LAW....THIS DID NOT HAPPEN ALL AT ONCE ...SENSITIVITY TO ALCOHOL INCREASED OVER THE YEARS...FIRST NO WHISKEY ....EVENTIALLY NO BEER...ALTHOUGH I DO DRINK A STIFF DARK GERMAN BEER ON OCCASION WITH NO ILL EFFECTS....FEVERS ...WHEN I HAVE A FLU ...I START TO WORRY .... AGAIN THE MORNING AFTER A NICE FEVER, I WILL MOST LIKELY FLOP...MY SEIZURES ALWAYS OCCURE IN THE MORNING, AND MAY CONTINUE THROUGH THE DAY.... THE ABSOLUTE WORST THING I EVER TOOK IS NYQUIL THE OVER THE COUNTER STUFF......GUARANTEED SEIZURE NEXT MORNING...SO WHAT HAVE DOCTORS DONE FOR ME ....DILANTIN AND PHENOBARBITAL....NO HELP...TEGRETOL SENT ME INTO SEIZURE STATUS HAVING 40 SEIZURES WITH IN A THIRTY DAY PERIOD..NOT TO MENTION THE ALTERED STATE I WALKED AROUND IN FOR THE ENTIRE 60 DAY TEST (THE FIRST THIRTY DAYS WERE VIRTUALLY SEIZURE FREE)...SO NOW WHAT ...A COUPLE WEEKS AGO I HAD A COUPLE BIG ONES FRACTURED MY VERTEBRAE AND BULGED SOME DISK WHAT DID THEY DO GIVE ME DEMEROL (ANOTHER NO NO FOR ME)...PRESCRIBED DEPAKOTE KEPT ME IN THE HOSPITAL FOR A COUPLE DAYS (TILL I COULD CRAWL INTO A WHEEL CHAIR AND MAKE MY ESCAPE)...SO I PAWNED A FEW THINGS FILL THE PRESCRIPTION...GUESS WHAT I'M WHACKO...ONE NIGHT I WAS UP ALL NIGHT DIALATED EYES CLAMMY SKIN....ALL BECAUSE I TOOK A ROLAID (I'M GUESSING)...DOUBLE VISION YES...MOOD SWINGS YES...WEIRD ACHES YES...VOICES MAYBE...THEY HAVE DONE IT AGAIN...I DO NOT INTEND TO EXIST IN THIS ALTERED STATE THEY USED TO SAY THIS WAS BAD FOR YOU NOW THEY WANT ME TO DO THIS AND BE HAPPY....ANY WAY AFTER MANY DISCUSSIONS WITH MY WIFE AND KIDS I'M RETURNING TO SELF TREATMENTSEVERAL YEARS AGO I READ SOMETHING THAT CAME FROM A 16TH CENTURY HERBAL "EATETH THE FAT" ...THATS A FAR CRY FROM 80 YEARS AGO AND THE KETONOSIS DIET (PROBABLY READ THE SAME HERBAL)...SO OFF TO MY HIGH FAT DIET AND BACK TO MY MORNING SMOKE I GO...A TREATMENT THAT WORKS FOR ME ...THE POINT OF THIS POSTING IS FOR ME TO VENT(A), TO LET YOU KNOW THAT YOU MUST PAY ATTENTION TO YOURSELF AND WHAT WORKS FOR YOU, THIS MAY TAKE YEARS TO DISCOVER(IT DID FOR ME), HAVING SEIZURES ISN'T ALL BAD ANYHOW, I'M NEVER DEPRESSED UNLESS MEDICATED, I SUFFER SOME MEMORY LOSS WHICH FREES UP MY MIND, MOST PEOPLE WITH EXCEPTION OF PRIMTIVE THINKERS AREN'T BOTHERED BY YOUR SEIZURES AND ACTUALLY CARE ...YOU MUST DO WHATS RIGHT FOR YOU AND YOUR LIFE STYLE, REMEMBERING THAT EACH PERSON AND THEIR SEIZURES ARE DIFFERENT, I THINK I CAN WALK TODAY.....HAVE A GOOD LIFE!

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