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Posted by sarah on April 21, 2000 at 20:43:09:

In Reply to: Depakene/4 yr old autistic boy posted by Liz Cohen on February 09, 2000 at 20:07:51:

: Hi I am new to this board.

: My autistic, developmentally delayed 4 yr old son has just been dxed with "staring seizures".

: Neuro has put him on Depakene (sp?). He told me there is a risk of liver failure and death in kids under 3 with profound MR. He told me that routine blood tests would not indicate whether the liver was in trouble, because one day the reading is normal, next it could indicate failure.

: So his conclusion is the blood test is not only unecessary but invasive to my son. Does anyone have any info on this? Any opinions?
: Thanks, I would really appreciate it! Liz

Hi Liz

I have an autistic boy with epilepsy but on different medication and he gets blood tests. He
doesn't like it but understands why he has them done and gets a big treat afterwards. You
are obviously feeling unsure and worried about this (so would I!) I would go back to the
Neuro (remember you're the client) and explain again your feelings about this and there
is always the option of a second opinion elsewhere.

Good luck with your boy it's like a double whammy autism and epilepsy I know what your'e
going through.

Sarah


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