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Posted by sarah on May 18, 2000 at 02:44:03:

In Reply to: a mum who needs input to help 7 yr old son posted by sue reddas on May 16, 2000 at 17:07:03:

: My son was diagnosed 6 weeks ago as having Complex Partial and myoclonic seizures. I didn't cope well but one has
: to adapt. Last Saturday night while sound asleep on the lounge next to me, his little brain decided to educate me on the world of
: Tonic-Clonic seizures. Being his first, I...well yeh and we rushed off to hospital. over the next 3 hours he had another 5 of these
: seizures. During this time his temperature steadily rose to 40.2deg. and hung around for 3 days. We are home now, but he is sooooo
: tired, can't concentrate/stay focused, and just is not himself. I have also noticed he is draging one leg, and is all of a sudden exposing
: his teeth when he drinks from a cup, with his lip curling upwards. I asked to drs they told me welcome to the world of Epilepsy. As a mum
: this is not the answer I'm looking for, and would really appreciate any feedback, experiences, and ideas on where to go from here. Sorry this
: is so long but I am just about beside myself as I watch my once happy little 7 yr old, falling apart at the seams.

: thanks sue

Hi Sue

I have a six year old with epilepsy/autism. I know how shocking this can be when it comes out
of the blue like this to your child. What I did was to learn all I could about epilepsy and autism-
the internet, libraries and of course joining our local associations have been really helpful.
Finding a paediatrician who is sympathetic and in touch is a must - look until you are really
happy.

For me being informed gave me a sense of control over the situation so things didn't look
so bleak.

Good luck with your son

Sarah


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