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Posted by DEB on June 12, 2000 at 02:47:22:

In Reply to: Hoping to hear from those who have tried the vagal nerve stimulator posted by Barbara on June 01, 2000 at 14:01:58:

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HI, BARB RE:VNS I JUST RETURNED FROM A SEMINAR, WOULD SURELY SHARE INFORMATION IF YOU WOULD LIKE, MY GRANDAUGHTER WHO IS 6YRS HAS SZ'S, AND CEREBAL PALSY, THE ONE THING I HAVE LEARNED AS A PRECAUTION TO THOSE THINKING OF THE VNS, IF SOMEONE HAS SWALLOWING DIFFICULTIES, PLEASE BEWARE........THERE ARE LOTS OF NEUROLOGISTS OUT THERE THAT TRUELY BELIEVE IN THE VNS, I'M NOT TOTALLY CONVINCED....WE HAVE FOUND THAT A DIET SIMILAR TO A MIGRAINE DIET HELPS , WE TRY TO STAY AWAY FROM CAFFEINE, ANYTHING WITH SEEDS OR NUTS, CITRUS,CHOCOLATE,BANANAS, AND HEAVY AMOUNTS OF SALT.....JUST SOMETHING YOU MIGHT TRY AND IT'S EASY TO DO THIS HAS REALLY REDUCED SZ ACTIVITY IN OUR HOME....DEB
Hello, I'm new here. My name is Barbara, and I have had seizures sine I was 12 (I'm 30 now). My tonic-clonics are controlled by the carbatrol and lamictal I take daily (1400 mgs carb, 300 mgs lamictal), but I still have quite a few simple partials and complex partial on a regular basis. And the medication makes me sluggish, so I don't want to increase it any more than I have to.

: I am considering having a vns installed in hopes of improving my seizure control. I'd like to hear from someone who has had it implanted. I'd definitely like to hear if there are any who have had a poor response, or who have chosen to have it removed.

: Appreciate any help you can provide,
: Barbara


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