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Message
Posted by Abbie on August 05, 2000 at 21:24:30:

In Reply to: Re: Neurontin posted by Darci on April 11, 2000 at 06:48:11:

: : : I was looking at this site and noticing that there is not a lot of information about Neurontin.
: : : Have any of you been on it for any length of time?
: : : Any side effects?
: : : Any information would be greatly appreciated!
: : : Thank you.

: : I've been on Neurontin for simple partial seizures for almost three years. I love Neurontin
: : because I experience no side effects. Yes, its possible that it makes me tired, but I've
: : been on so many different drugs I don't think I remember anymore what it feels like not to be
: : tired. My doctor says he doesn't have very many people on it because its not strong enough.
: : It also does not prevent grand mal seizures.. I think its only good for simple and complex partial.
: : Sadly, I had to discover that fact for myself. You also don't have to have levels done every
: : month when you're on Neurontin. However, they won't know how much to put you on so
: : you just have to keep taking more until you stop having seizures, or they get less and
: : less. Which can take a while. I take seven pills a day. 2100 mg. People may take up to
: : 10 pills a day. If you're taking it for simple partial seizures write me another note. I've
: : never met anyone else who has them.
: : Kate

: HI KATE! WELL, AS YOU CAN SEE BY THE DATE, IT HAS BEEN QUITE AWHILE IN BETWEEN RESPONSES!
: I RECENTLY FOUND OUT THAT I DO NOT HAVE COMPLEX PARTIAL AS I RECENTLY THOUGHT, BUT SIMPLE PARTIAL!
: I AM STILL LOOKING FOR AS MUCH INFORMATION AS I CAN GET! PLEASE FEEL FREE TO EMAIL ME, WOULD BE NICE TO TALK TO YOU! WILL JUST HAVE TO REFRESH MY MIND AS TO WHERE WE FOUND EACH OTHER! :-) LOVE THESE MEMORY PROBLEMS, DON'T YOU??
: TAKE CARE,
: DARCI
Hello , My daughter was on a drug study for Neurontin. At the end of the study we tried to wean her off of it beacuse of her mood swings. Also we didn't know weather it was the real thing or not. We found out the hard thing that it was the real thing because she started having grand mal seizures after a week of trying to take her off.That has been 3 years ago. We have tried several differnt kinds of meds since then. Now we are going to try the Vagal Nerve Stimulator.She is scheduled for surgery August 10.Hopefully this will work better than all of the others.
Thanks for listening, Abbie

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