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Posted by Chuck on August 09, 2000 at 10:44:52:

In Reply to: Looking for causes of sons Epilepsy and PFAPA posted by Randy on February 09, 2000 at 00:27:32:

Please send any info on PFAPA to me as well. My nephew has just been diagnosed with PFAPA. The doctor said steroid treatments at the onset of the fever would help, but not cure. He can't take steroids because he also has OI - Osteogenisis Imperfecta - a brittle bone disease. On top of that, he just came out of surgery to repair a hole in his heart. We were told that none of this is related to to PFAPA. Our family is looking for any assistance on treating this, or positive information on the end result of the illness.

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