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Posted by jim laughlin on August 09, 2000 at 12:14:19:

In Reply to: Re: Looking for answers, 3 yr. old having siezures posted by colleen on May 03, 2000 at 10:16:40:

: : : My 3 yr. old son started having siezures in Jan. 2000,
: : : when i found him he was lying lifeless on the floor staring into space and he had thrown up, he was in this state for about 15 min. He threw up a few more times while in this state. The hospital admited him overnight and ran a cat scan, spinal tap, chest x-ray, and blood tests all which came back normal (of course no EEG!!) exactly 3 weeks later he had another one, this time when i picked him up he was stiff, and again threw up several times,he did not stay still though he limped up, eyes again were wide open and staring and he was again none responsive, He stayed in this state for over an hour until the hospital used medical intervention to bring him out of it. he was admited and stayed for 2 day's, this time they did an EEG and it showed alot of siezure activity. He was on dialantin but he was seen at Children's Hospital for another EEG a month later and it showed he was prone to siezures and they also changed his med. to tegretol
: : : 3 times a day. They did not tell me what kind of siezures he is having and that is what i want to know.
: : : I would like to find others who have children with siezures to talk to.
: : : If anyone has had a similar experience and have a pretty good idea what kind of siezures he is having i would like any info.
: : : Thanks
: : : Sherri
: : : burgan@nb.net
: : Reply: Hi. I have 4 children. My last to children Nick, and Julia both started having the exact and I mean exact same seizures at the age of three! They only have mild EEg disturbance. They too have long seizures, Nick maxed at three hours. They have been on dilantin, tegretol, depekote, topomax. They only have seizures maybe once or twice a year. Both at developmentaly delayed by approximently two years. Please email me. I want to contact you. I would have to write many pages to discuss what we have found. But I think we figured it out. To make a long story short, Both kids do not metabolize proteins properly, their urinary amino acid levels were severely dificient, proper neurotransmitter level were at the severely deficient levels ie. no seizure control. Their fatty acid profiles showed severe aberations. this also implicates neurologic disorders. Call Dr. Patricia Kane, a biochemist in Millville New Jersy . Her company if Body Bio Center. Just call information that can give you the phone number. She is a specialist in epilepsy, autism and learning disabilites. She can peg the nutritional imbalance that is causing the abnormal EEg and seizures. Don;t waste time. We lost 5 years on Nicki until we found her. God Bless and good luck.

: This is in response to a reply mentioning Dr. Patricia Kane at the Body Bio Center in Millville, NJ. I have been upable to get a phone number for her or her company. I would be very interested in contacting her regarding our son so has a history of seizures and has been on Depakote for several years now. Anymore information regarding her or her company would be greatly appreciated. Thanks.

listen with skepticism to specialists who tell you that your kids will be fine and they will grow out of it. we lost our ten year old son in june to a siezure. the siezure was either so strong it kept his brain from getting oxygen or it made him not be able to move his head and he suffocated from being face down into his pillow and breathing his own carbon dioxide (much like a SIDS death). he had been to nuerology specialists at age 8 and they told us he would be fine and grow out of it. had a cat scan and sleep testing and they told us we had nothing to worry about. we think he had siezures maybe 1 or 2 times a month usually onl;y for a few minutes in the a.m. waking hours 6-7 a.m. i am not trying to scare anyone and i am no doctor but i want to share with others having this problem to beware.

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