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Posted by Patsy Wilks on August 15, 2000 at 15:38:00:

In Reply to: Hoping to hear from those who have tried the vagal nerve stimulator posted by Barbara on June 01, 2000 at 14:01:58:

: Hello, I'm new here. My name is Barbara, and I have had seizures sine I was 12 (I'm 30 now). My tonic-clonics are controlled by the carbatrol and lamictal I take daily (1400 mgs carb, 300 mgs lamictal), but I still have quite a few simple partials and complex partial on a regular basis. And the medication makes me sluggish, so I don't want to increase it any more than I have to.

: I am considering having a vns installed in hopes of improving my seizure control. I'd like to hear from someone who has had it implanted. I'd definitely like to hear if there are any who have had a poor response, or who have chosen to have it removed.

: Appreciate any help you can provide,
: Barbara

Dear Barbara,

Our daughter received her stimulator in 1998. She is 37 years old, mentally retarded, the stimulator has worked great for her. Her seizures have improved 80%. She has gone from 26 pills a day to ten, and doing very well.



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