Posted by Julie
on August 31, 2000 at 23:14:43:
We have four children who all suffer from a genetic heart disorder, which was at first mistakingly diagnosed to be Epilepsy in my daughter who was 3 yrs old at the time, although two lots of EEG tests came back clear, no one could find a reason behind her episodes of blacking out, we were concerned that if her eegs were normal that maybe it could be some other reason behind the events of unconsciousness with her, so after many different doctor visits and finding nothing, I asked for her to have her heart checked and it was then that the heart disorder known as the LONG QT Syndrome(LQTS) was discovered,By this time she was 5yrs old, its a genetic condition and so our whole family needed to be screened, it turned out that four of my 5 children along with myself have Long QT Syndrome.I used to faint regularly as a child.
This condition can easily be mistaken for epilepsy as the symptoms appear very similar and so it can be easily overlooked.
If anyone has a normal EEG after testing for epilepsy, I suggest you ask for an ECG to test the heart, just in case it could be heart related.
Our middle three children now have a pacemaker and all four with Long QT Sydrome take beta blockers and do very, very well.
Best wishes to you all.