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Posted by Joyce Hickman on September 03, 2000 at 14:48:56:

Our 10 year old granddaughter began having seizures (very mild facial paralysis, drooling) lasting only for a few seconds last November. Tegratol was prescribed, along with a battery of tests, which revealed a tumor on her left temporal lobe. Surgery was performed, revealing a non-malignant fibroid tumor. She continues to take a very high level of tegratol on a daily level. Recently, due to a move and other stressful circumstances, she missed a couple of med doses and had some seizures (even more mild than the earlier ones). The doctors upped her Tegratol level and want her to see a neurologist. I am concerned about several things: a) the tumor can grow back; b) whether or not she is actually epileptic, or are the seizures caused by the tumor and resultant trauma to the brain as a result of the surgery . She is arriving this evening to live with us for the school year, and I will be home schooling her. I would like to find some answers to all these questions; dont' know where to start. We are currently living in Canada, altho we are citizens of the U.S. I am thinking of taking her to either Detroit or perhaps to Cleveland to the Epilepsy Clinic there. Any comments or familiarity with a situation bearing any resemblance to this situation would be highly appreciated. Joyce

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