Posted by Christine Longton on September 14, 2000 at 13:43:50:

In Reply to: Re: to looking for cause of eplepsiy and PFAPA. My daughter has it.M posted by Denise Ryan on September 13, 2000 at 20:31:37:

My son does not have Epilepsy but was diagnosed with PFAPA by a Dr. at the Connecticut Children's Hospital. I've read many articles on the subject but they don't mention a failure to gain weight. My son will not eat during his episodes which causes him to lose weight. Then, between episodes, he gains the weight back but no more. He's 2 yrs. old and was at the 75% for weight and has dropped to 45% because he hasn't gained a lb. (26 lbs. and holding) in the last 6 months. I was wondering if any other parents of children with PFAPA have experienced the same thing. I feel that I'm handling the episodes okay, just the fact that I'm putting him in the same clothes for fall that I was in the spring while I seem to be constantly shopping for larger sizes for my 4 yr. old. Anyone is welcome to e-mail me at calongton@speedbowl.com