Posted by Teri
on September 17, 2000 at 14:54:00:
In Reply to: I need answers my doctor isn't giving them posted by Tonya on September 04, 2000 at 23:45:41:
: My son was flown out to Salt Lake City UT for an MEG study which is an MRI and EEg mixed together. In their findings they saw abnormal scattered activity in his right temporal lobe with some frequent bursts in his left lobe. He was to undergo several others tests because in the findings it didn't clearly show any signs of eptileptic activity. But as I read and search for answers it seems to me (and you can tell me that I am wrong) that this activity in his brain is classified as an eptileptic disorder? Please help me, he is only 4 years old and I live in Nebraska and don't have a child neurologist within 6 hours of me and I hate the doctor he has. He should have been doing follow ups with him and he never has for over a year now (since we got our findings back from Utah. I need some help I am tired of being alone trying to play doctor. Thakn you for any information you could give me.
Tonya, my child was eight when she had her first seizure (tonic clonic). Her neurologist wasn't interested in finding out WHY she'd had this seizure; we were just suppose to except this laying down. Totally unexceptable, from our point of view. Our child is also autistic so I wasn't at all interested in medicating her, as she has enough of a shroud to function under without adding to it. A book was suggested to me that explain what seizures are. It's title is; "Seizures and Epilepsy in Childhood A Guide for Parents"; John M. Freeman, M.D.; Eileen P. G. Vining, M.D.; and Diana J. Pillas are the authors. This book discusses how and why seizures occur, diagnoses, evaluations, treatment, types/kinds of seizures.....all explained clearly and intellegently. It's a vaulable resource. We've discovered that our child's seizure threshold is hypoglycemia (LBS, low blood sugar). By keeping her on a hypoglycemic diet she doesn't have seizures. I can't say that this will always be true, but it is working for now. I was very interested in getting her into the keto diet, but she wasn't eligible. But again, what we're doing now is working. I take one day at a time and re-evaulate our decisions regularly. Best of luck to you. Sincerely, Teri