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Posted by sarah on September 28, 2000 at 02:01:47:

In Reply to: epilepsy and down syndrome posted by Debbie Blevins on September 27, 2000 at 16:37:14:

: Hello. I have a daughter who is 7 years old with down syndrome. At 6 months of age she started having seizures. They haven't stopped. All meds wouldn't work at all. This past July we started the Ketogenic Diet and for the last 3 weeks we haven't seen a seizure. She had had more than 30 daily. She has Lennox-Gasteau.Does anyone out there have a child with DS and seizures or on the diet or something. My daughter is 7 but mentally 8 months of age but a doll and we love her immensely. Would love to hear from anyone! Thanks.

Hi Debbie

I have a child with autism/epilepsy. I think you will have more luck on Downs syndrome boards although I did have some luck getting onto children's epilepsy sites of which there are a few. I have joined my local epilepsy organisation which has been alot of help and read every book in the library. As a parent of a special needs child I feel for you and wish you all the luck in the world.

Best wishes

Sarah


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