Posted by sarah
on September 29, 2000 at 00:18:59:
In Reply to: Questions posted by Rango on September 28, 2000 at 20:53:37:
: Halo, new to this board. Our daughter 9 has Epilepsy, generlized szs.I have asked the neuro if more tests should be done, and her response was no.I feel there should be, it feels like there is more going on and I just cant pin point what exactly it is.There is some devolpmental delay as well. Has anyone else had tests done and if so which should we ask to have done?It is hard to accept that she has Epilepsy and needs medication and to just leave it at that.I guess I am looking for more answers that make sense maybe?
: Brits head drops alot at school and shes failing, having a hard time with school and all around frustrated.Her medications either keep her up all night to wonder around the house, or they canknock her out and its hard waking her up.Her behavior can be a bear at times.Anyone else going through this?
: Thanx Rango :)
I have a child epilepsy and autism. I strongly suggest you look around for a paediatrician who you have trust in, contact the school counsellor and local health services - get your daughter tested. Join a epilepsy association, look around the different epilepsy sites regarding childhood epilepsy. As for medication if the medications are mucking her around (she's only nine) get them changed - my son was on tegeratol but kept getting breakthrough seizures and made him very sleepy - he is now on different meds. and is so much better. If your not happy with what you hear get a second opinion no one knows your child better than you. I wish you all the luck in the future. Sarah