Posted by laurell
on October 21, 2000 at 08:56:30:
In Reply to: Re: Complex Partial Status Seizure posted by Joanne on April 05, 2000 at 02:18:09:
: : I'm a first-time post-er, and need information and encouragment regarding complex partial status seizures.
: : I've just experienced my first, after many years of only grand mal (tonic-clonic) seizures.
: : Doctors in the ER missed the diagnosis, even though they were well aware that I am epileptic, and focused, instead, on
: : psychological/psychiatric symptoms. This was frustrating to me. It will help me to read a variety of your complex partial seizure
: : experiences so to compare my own, although I know that we are each individual. I'm wondering why, after so long a time of one kind of seizure,
: : I should suddenly have another. I became mute, apparently, and no one could figure out why. I had my typical aura of feeling apart from my surroundings and
: : unable to communicate well. This did not generalize into tonic-clonic activity, but did move into two days of sleeping and very little contact with
: : others around me. My recall is almost nothing. I'll thank you now for your attention and help. It was really a disconcerting experience, which put me in the
: : hospital overnight. All bloodwork was normal, but my behavior, especially speech, was affected. Thanks again.
: Hello Ann,
I've had complex partial epilepsy since I was 7 and now I am 35 and they have only now been able to postively identify my condition because technology has caught up with my head and my epilepsy is deep inside my brain and hard to detect. Doctors would diagnose me then others would just say I had anxiety or depression. 2 years ago I gave birth to a beautiful daughter but that meant two things changed. No more going to bed for three days when I was feeling crazy and also my period changed. I used to only menstrate once a year or every two years but began to be regular and then closer until finally my cycle was 5days. There is a definite link between my post period time and my seizures and I have never been so "sick" with my epilepsy. I also started to have panic attacks which my Nuerologist says can be a direct link from over active epilepsy although he hasn't ruled out tonic-clonic yet. I am a single Mum now with lots of support and I say to you ask for help from everyone for help at home and just keep bugging those doctors. Its just tricky stuff but I'll be thinking of you. My motto is wake up every day, go to sleep every night and do whatever you have to do in the middle to accomplish those two objectives.
Goodluck, love Laurell