Posted by Susan Eade
on December 16, 2000 at 23:07:04:
In Reply to: Re: Menstrual cycle & Epilepsy connection? posted by Sheila on May 06, 2000 at 20:57:23:
: : : : : Has anyone ever heard of a connection between menstrual cycles and epilepsy. Both grand mal seizures I've had, I've been on my period.
: : : : Answer yes!!!!!!!!!!!!!!!!!!!!!!!!!!!!
: : : : When my menstrual cycle comes on if I do not take Primrose Oil, I will go into convulsions.
: : : : Or almost go into them. I asked my doctor if there is a link between menstrual cyclyes and
: : : : epilepsy and he said yes, but the study on it is so wide, that they do not study it, because it
: : : : is such a broad field.
: : : : Sincererly, Nancy
: : : >>>I sure wish they would get in gear because I too seem to be developing problems concerning my period and my seizures. I think it has everthing to do with hormones. After having both my children, within 2 days I had grand-mals. Never had them before. I asked my neurologist at the time and my gyno about this hormonal connection and they just shrugged it off. From what I've learned the type of epilepsy where the seizures occur near your period is called Catamenial Epilepy.
: : : Donna
: : DONNA!!!
: : I have Grand Mal seizures & am convinced that they are triggered or in conjuction with my period. My auro's (sp) are really strong at that time. In any case, I am on Tegretol & Klonopin. I want to get pregnant but am scared...is anyone out there going through this or has gone through it. LYNNE
: Donna, I have the same problem as you have. Also, from June 99 - Jan. 00, I didnt' have a
: normal period. My would be spots and it seems as if my seizures began to get worse.
: I developed bronchial pneumonia in Jan. and all of a sudden, I began to have normal periods,
: as well, I've had two grand-mals since then. I don't normally have grand-mals but every
: two-three years.
: I began reading about catamenial epilepsy and it does seem to be what I have. It was
: my gyneocologist that suggested that I keep record of my periods/seizures. Now, I'm
: in my mid-40's, my seizures seem to be getting worse (especially due to stress, right now)
: but it would be best that you see your gyneocologist. I don't have a gyneocologist near-by
: I have a fantastic doctor and he has a female physician's assistant. The assistant looked up
: the term, catamenial epilepsy, and she convinced him to prescribing me Premphase hormones.
: They have managed to keep my periods on track for now, but it hasn't helped my seizures any
: better. I still continue to take my epilepsy medication as prescribed. Hope this helps.
: Many women do not realize to keep a chart of their seizures and periods when it's best to do.
There is MOST DEFINITELY a link between periods/hormones and seizures. I recently attended a couple of conferences sponsored by the Epilepsy Foundation, one of which was for women with epilepsy only in which issues affecting them were discussed at length. There is quite a bit of material/information available regarding catamenial epilepsy - seizure activity when hormones are fluctuating during the menstrual cycle. Unfortunately,not much research has been directed toward menopause and epilepsy as yet, although we were told that grants have been applied for, and should get underway soon. I would encourage you to check out the Epilepsy Foundation's web page - it's full of information.