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Posted by Sid on September 27, 1999 at 04:35:19:

In Reply to: Re: Effects of long term use of Dilantin posted by Eric on September 12, 1999 at 18:45:35:

: I've been taking Dilantin most of my life.
: seizure disorder started from a brain damage from
: an auto accident as a child. I was first of all
: was under other medications to help in keeping
: control of my nervous system. Eventually the doctors
: switched me over to the two medications, Dilatin
: and Mysoline. During the mid 80's the doctors
: took me off Mysoline from going without any
: epilepsy for so long.
: Then in the late 80's the doctor wanted to take
: me off Dilantin. My mother got three opinions
: from neurologists outside this doctors clinic.
: Eventually after looking over the blood test etc.
: they all said, "Absolutly Not!"
: Right now at this present time, my wife and I
: are involved with another doctors clinic.
: Just two weeks ago our family doctor asked how
: long it's been since the last seizure I've had?
: I told him it's been up to if not over 25 years.
: Now he's telling me that I could probably get off
: the Dilantin. Well right now my wife is helping me
: set up an appointment with another neurologist to
: prove to the family doctor how unsafe it's might be.
: Right now I'm function beautifully. I'm keeping
: a very cautious eye on my gums. So since I'm
: not having any problems or other side effects from
: being on the medication, then why get off.
: If I were to take the risk of saying, "Yes, I'll
: try getting off the medication," it would be the
: biggest mistake in my life. Why get off the med-
: ication when I already know the possible permanent
: side effects that could result to me from my
: nerves not receiving the medication. I already
: know of enough people who got off the medication
: with or with out the doctors supervision and
: resulted in anything from speech impairment, loss of
: some vision and one of the nerves that effects
: their walking performance. Right now most of them
: are back on the Dilantin again. But the new side
: effects are permanent.
: I don't want to be the next one.
I am searching for information on dilantin and came across your message. I have been on dilantin since May 1998, due to seizure after brain surgery. I am a 41 year old male in otherwiise excellent health. I have not had any seizures since taking the dilantin (I take 300 mg per day). I am in otherwise excellent. health. I am a runner and run 4 or 5 miles 2-3 times per week. I am just concerned about putting any unnecessary chemicals in my body. Any comments would be welcome.

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