Posted by Dee
on November 10, 1999 at 12:50:42:
In Reply to: felbamate - can you go back on it? posted by susan on October 24, 1999 at 17:31:05:
: I have been on most every anti-seizure med and I am currently on just 350 mgs of topomax. I am way to spaced out and constantly tired. A few seizures.My doctor took me off lamictal because that had ceased to control seizures. At one time about five years ago I had been on felbatol and it had worked but then I started I moved and my new doctor changed things around. Now my current doctor has me only on the topomax. I know there is the possibility of aplastic anemia but I don't know all the specifics of that. I did not get that before when I was on it. Does anyone know anything about this?? If you are reading this thank you for letting me ramble on. I have no patience with epilepsy and dealing with all the meds and the side effects that are always there. Felbatol helped me with seizures the best. I thought that maybe with a combo of topomax and felbatol I could finally hit upon a good mixture. Thanks, Susan
Please contact me at my email if you want to talk about this more in depth. I have alot to say. I am currently taking felbatol and have seizure control. I will tell you this, I am a 34 year old female (married w/2 kids) and one thing no one ever told me until this last year, and that's because I made the remark that I still have 3 seizures the day before my period and 3 seizures after my period. It was then that my doctor told me that it's all tied it together! Wow. what a revealtion, now it all made sense! So if you want more info email me at Dee2rtwo@aol.com.