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Message
Posted by ~S on December 10, 1999 at 15:01:59:

In Reply to: newly diagnosed seizure d/d posted by Dee on December 07, 1999 at 11:26:06:

Dee I understand your frustration. You are right to suspect this affected your sons school performance. Just think how smart you son must be to have made it this far? I keep telling that to myself about my daughter. Luckily she has been diagnosed at a very early age 6.

I also understand why you are angry. My daughter has been in a special needs program for 3 years in the school system here. Not ONE person picked it up! Finally this year a teacher noticed it. I even brought epilepsy up in the past and it was dismissed. When applying for the preschool program I wrote down the classic symptoms of staring off into space, acting confused or like she cannot hear me at times. They tested her hearing and said it was fine. So then it went on to be speech or motor skills or this thing or that thing. I am sure I appeared like a lunatic at some of the meetings because the things they were saying about my child just did not make sense to me. And besides all of their help was not helping her. Even her doctor missed it when I took her in there once and said she spaces off like she is in a fog and cries in class, maybe she can't breath well and its asthma(since my asthma does that to me I was hoping it was that). Yes it upsets me to even think about it... But I had to come to the realization at how fortunate I am that we caught this before she got much older then had a grand mal seizure behind the wheel of a car, or while riding her bike or some other dangerous situation.

Hopefully with time that will change and in the future you can sort of heal that wound and move forward and work with your son and his care.

Your son must be brilliant to have gotten this far. Imagine what it would be like to have 25% of your day spent unaware of what is going on? It would be like watching a movie without the sound on for part of the show and then trying to figure out what happened.

Good Luck
~S

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