Posted by Lindsey
on January 21, 2000 at 10:04:44:
In Reply to: Re: Seizure Meds & Pregnancy posted by D. Henry on January 08, 2000 at 20:33:05:
Dear D. Henry-
I am sorry that I didn't get back with you sooner. I haven't looked at this website since I posted the initial message at the beginning of Jan. I also took tegretolxr for the last 2 years before I stopped taking medicine. I took that and carbatrol but not together. Presurgery, I took about 4 different kinds of medicine 4 times a day! Needless to say, I am much improved!
How'd they do my surgery? Well, my cp seizures were coming from the right side of my brain. I had to go through a years worth of testing to determine if I was even a candidate for the surgery which I had at Cleveland Clinic. After becoming a candidate (where they determine if you can have the surgery without causing anymore damage to the good tissue and risk things like sight and hearing etc.), I went for the surgery and the first thing they did was open my head and place a plate of electrodes directly on my brain. 72 wires came out of the top of my head and were connected to an EEG which ran 24 hrs. a day and they video'd me all of the time to record my seizures (they also took all of my med. from me)and so they could tell where the focal point of my seizures were. After giving the neurosurgeon a 95% assurance that he knew where my seizures were coming from, he decided he wanted that extra 5% so they inserted an electrode through the right side of my face near my mouth and it layed at the base of my brain on the right side. They continued to record my seizures. Finally, after being 100% sure, they made a map of my brain and the neurosurgeon removed a total of 5 and a half inches of brain tissue. 3 and a half inches on the right side and 2 inches in the front. It was determined that I had scar tissue on the right side and a lesion on the front. The cause of my seizures, they think, are from when I was 15mo. old and had a high temp. causing me to go into convulsions. At 8 yrs. I started having seizures. I am now seizure free for 10 years and rarely(maybe 3 a year)have auras. I couldn't be happier with my life now. It was also determined from the surgeon that I would probably still have seizures after surgery, albeit a lot less of them, because they couldn't remove all of the damaged tissue. I proved them wrong. There are a lot more details about all of this if you are interested in knowing. If so, let me know and I'll answer anything your interested in. Once again, I am sorry it took so long to respond. I'll check this more often to see if you have any questions. Have a good day.