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Message
Posted by Randy on February 09, 2000 at 00:27:32:


Last November(1999) our son had a grand mal(tonic clonic)seizure
which lasted about 15 minutes.
He was taken to the hospital and spent 3 days there where he had an
EEG done, cat scan and numerous other tests. He was then referred
to a pediatric neurologist and was diagnosed as having primary
generalized epilepsy based on the EEG(cat scan, MRI and all other
tests came back normal. He was immediately put on Depakote 125mg
twice a day(the carnitor is to counteract the side effects of the
depakote). He was a very healthy child up until the beginning of
last year(shortly after he turned 3) when he also started having
a fever around once a month(he did not have a fever when he had his
seizure). The fever lasts for 2-3 days, goes up to around 104
degrees and there are no other symptoms with it. We were referred
to a pediatrician just recently for this(because our family doctor
could find nothing that was causing the fevers) and was diagnosed
as having Periodic Fever Syndrome or PFAPA and they feel that the
fevers and Epilepsy are not related. We are wondering though if
the two could be related or if the fevers may be a form of
migraines or if he has an allergy of some sort that is causing all
of this. He has not had any more grand mal seizures, but he has
what we call "starts" of seizures where he will suddenly jerk
forward, but then it is like he catches himself. These seem to
occur when he is tired or stressed. The cause of his Epilepsy is
unknown and they say he may grow out of it. There is also no
known cause for PFAPA and it is also something that they say
he should grow out of. So we don't know if we should just
accept what the doctors say or look for a possible cause or
where to start if we do.

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