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Message
Posted by Kathy on February 09, 2000 at 19:51:59:

In Reply to: Looking for causes of sons Epilepsy and PFAPA posted by Randy on February 09, 2000 at 00:27:32:


:
: Last November(1999) our son had a grand
mal(tonic clonic)seizure
: which lasted about 15 minutes.
: He was taken to the hospital and spent 3 days
there where he had an
: EEG done, cat scan and numerous other tests.
He was then referred
: to a pediatric neurologist and was diagnosed as
having primary
: generalized epilepsy based on the EEG(cat scan,
MRI and all other
: tests came back normal. He was immediately put
on Depakote 125mg
: twice a day(the carnitor is to counteract the
side effects of the
: depakote). He was a very healthy child up
until the beginning of
: last year(shortly after he turned 3) when he
also started having
: a fever around once a month(he did not have a
fever when he had his
: seizure). The fever lasts for 2-3 days, goes
up to around 104
: degrees and there are no other symptoms with
it. We were referred
: to a pediatrician just recently for
this(because our family doctor
: could find nothing that was causing the fevers)
and was diagnosed
: as having Periodic Fever Syndrome or PFAPA and
they feel that the
: fevers and Epilepsy are not related. We are
wondering though if
: the two could be related or if the fevers may
be a form of
: migraines or if he has an allergy of some sort
that is causing all
: of this. He has not had any more grand mal
seizures, but he has
: what we call "starts" of seizures where he will
suddenly jerk
: forward, but then it is like he catches
himself. These seem to
: occur when he is tired or stressed. The cause
of his Epilepsy is
: unknown and they say he may grow out of it.
There is also no
: known cause for PFAPA and it is also something
that they say
: he should grow out of. So we don't know if we
should just
: accept what the doctors say or look for a
possible cause or
: where to start if we do.

Yes fevers can deffinetly trigger szs. also I food allergies, and othr daily things like fabric softners, perfumes, and more can and do trigger my szs and I have pages of info you can read it yourself. Most MD's dont look for a cause 90% of the time they only supress the symptoms with toxic meds as I was for 30 poisoned yrs till I took control of my health-szs..If you want info and chat more email me. at KweenB@webtv.net

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