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Posted by Kim on September 08, 2000 at 07:56:27:

In Reply to: Re: optic nerve atrophy posted by Edwina on June 26, 2000 at 09:19:52:

: : i have an eleven year old son with optic nerve atrophy and would love to chat with others who are familiar with this disease. School adaptations and other info would be helpful to talk to others about.

: my 15 year old son was recently diagnosed with optic nerve atrophy and i'm interested in finding out info on types of lighting , and any other resources, which could help him out

Our son was diagnosed with bilateral optic atrophy in 1998. We hav'nt had any answers to the cause but we've been working with doctors and his schools. Here's what we've been able to do so far. His books are enlarged to three times the normal size of books. He uses erasable ink pens (black). The lines on the paper are darker and farther apart. They have some of the subjects on tape. He has trifocal and binocoler glases that he used last year. Go to your county ISD. They've been great. They will give you all the help you need.

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